Curing a rare disease is always a race against the clock. Curing EB is a race
against a clock moving at warp speed. Plainly speaking, the more funds we can
raise, the more research we can fund and the more lives we can save.
While we continue to seek federal research funding, we estimate that only $16 of federal funds is
spent per person per year searching for cures for individuals inflicted with
rare diseases. In order to beat EB, we rely on each and every person willing to
help. Every donation brings us a little bit closer to enable a child with EB to
live a full and pain-free life.
The Jackson Gabriel Silver
Foundation officers and board members take no salary or form of compensation. We
keep all costs to a minimum, enabling 99% of your donation to flow directly
through to the life saving research being conducted.
On behalf of the children afflicted with this terrible disease, we thank you for
your generosity. Because of your help, each of these children has a chance to
live the way every child deserves to live: pain-free.
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